Infants and Toddlers Needed for Research Study
Craniofacial Microsomia:  Longitudinal Outcomes in Children Pre-Kindergarten (CLOCK)
ORA: 13031801-IRB01 Date IRB Approved: 4/16/2014
Amendment Date: 5/5/2014

Dear AmeriFace® Members and Visitors:

Researchers from the CLOCK team want to learn more about the development of infants and toddlers with craniofacial microsomia (CFM). People with CFM are born with different faces. Sometimes they have small ears, or they may have only one ear. They may also have a differently-shaped head. Researchers want to learn more about how these facial differences affect socialization and development. They also want to learn more about associations among ear differences, hearing, speech, and developmental outcomes.

The principal researchers for this study are Dr. Carrie Heike and Dr. Matt Speltz at Seattle Children’s Hospital.

This study is for infants and toddlers who are about a year old (i.e., your child would need to be seen for his/her first study visit at 12-13 months of age) who have certain physical characteristics of craniofacial microsomia, Goldenhar syndrome, hemifacial microsomia, or oculo-auriculo-vertebral spectrum.  Contact our study to learn more about who is eligible

We are also asking parents to participate. This study would involve two study visits and one telephone interview.  Research is always voluntary!


All study visits will take place at:

Seattle Children’s Hospital, Seattle WA
Children’s Hospital of Los Angeles, Los Angeles CA
Children’s Hospital of Philadelphia, Philadelphia PA
University of Illinois at Chicago, Chicago IL
University of North Carolina, Chapel Hill, NC
Shriners Hospitals for Children, Chicago IL

To take part in this research study or for more information, please contact

Your participation is appreciated!  AmeriFace® ~ Making a world of difference in a world of facial differences®!

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