State Resource Guide
New York

The AmeriFace State Resource Guide serves all organization programs, including cleftAdvocate, Crouzon Support Network, Goldenhar Syndrome Support Network, Treacher Collins Syndrome Support Network, Family-to-Family Connection, the AFD Network, and the Pathfinder Outreach Network.  This is by no means a complete database of local/regional support services.  Submit links to the webmaster.
Interdisciplinary Team Care

Find a Cleft/Craniofacial Team in New York

ACPA Team Standards &
Parameters of Care

AmeriFace does not endorse or recommend any
particular team, doctor, hospital, other healthcare professional or any particular course of treatment.
Pathfinder Outreach Network
You are not alone!

On this page you will find contact information
for many of our Pathfinder outreach volunteers.
Feel free to contact them directly.





Meet Pathfinders
Outreach Volunteers
Become a Pathfinder!





Leadership
Pathfinder Coordinators
Action Team Members
Staff Members
Pathfinder Partner Organizations

Abbreviations
UCLP - Unilateral Cleft Lip & Palate
BCLP - Bilateral Cleft Lip & Palate
CSP - Cleft Soft Palate
PRS - Pierre Robin Sequence
HFM - Hemifacial Microsomia
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Choose state.

Pathfinder Coordinator
Kelly Luckey (BCLP)
Binghamton, NY
Phone:  (607) 743-1425
kellyaluckey@yahoo.com

Pathfinder Coordinator
Lindsay Kolk (UCLP)
Elmira, NY 14905
Phone:  (607) 425-9414
linz_is_happy@yahoo.com

AmeriFace Action Team
Pathfinder
Kiku Collins (BCLP)
New York, NY
kiku@kikucollins.com

Pathfinder
Jacqueline Dooley (BCLP)
Eddyville, NY
jackie@jacquelinedooley.com


Pathfinder
Deborah McGowan
(Hemifacial Microsomia/Cleft Lip/Atresia)
Liverpool, NY
Phone:  (315) 622-3060
dmcgowan@twcny.rr.com

Pathfinder
Katie Prince
(Crouzon Syndrome)
misskatherineprince@hotmail.com


Pathfinder
Michelle Cuttler (CLP)
Syracuse,  NY
Phone:  (315) 487-9170
mcuttler@twcny.rr.com


Pathfinder
Carolyn Albert (UCLP)
Rochester, NY
Phone:  (585) 865-0151
cb116@yahoo.com

Pathfinder
Alison Vivona (UCLP)
Brooklyn, NY
Phone:  (718) 265-7125
ajvivona@verizon.net

Pathfinder
Karen Bess (UCLP)
Warwick, NY
karen_bess@yahoo.com

Pathfinder
Marilyn Feinberg (Adult)
Syracuse, NY
Phone:  (315) 449-4723

Pathfinder
Mary Daikos (BCLP)
Malta, NY
mdaikos@nycap.rr.com

Pathfinder
Amanda Veazey (CSP)
East Amherst, NY
amanda_veazey@yahoo.com


Pathfinder
Mary Parker (BCLP)
Medusa, NY
Phone:  (518) 239-6188
Mary73@email.uophx.edu

Pathfinder
Gail Guttman (CLP)
Scarsdale NY
Phone:  (914) 723-3600
gailgutt@hotmail.com

Pathfinder
Joe Seago (Adult) (Cleft/PRS)
East Elmhurst, NY
Phone:  (303) 921-6057
joe.seago@gmail.com

Pathfinder
Barbara Dean (CLP)
Rochester, NY
Phone:  (585) 334-3654
barbie67@rochester.rr.com

Pathfinder
Chris LaFountaine (BCLP)
Lake Grove, NY
clafo@optonline.net

Pathfinder
Lou Petrucci (Adult) (CLP)
East Setauket, NY
Phone:  (516) 330-6643
lpskip22@hotmail.com

Pathfinder
Dr. Margaret Fusina (CLP)
Bronx, NY
bookstruck@yahoo.com

Pathfinder
Julie Miller (UCLP)
Branchport, NY
jbcolvin@hotmail.com

Pathfinder Partner Organization
Lucky Smiles
A Yahoo-based support forum

Pathfinder Partner Organization
Forward Face
317 East 34th St., Suite 901A
New York, NY 10016
Phone:  (212) 684-5860
camille@forwardface.org


Pathfinder Partner Organization
Hagedorn Cleft/Craniofacial Ctr.
North Shore University Hospital
300 Community Dr., Manhasset, NY
Phone:  (516) 466-2990
Linda Dunckley

Pathfinder Partner Organization
Cleft Palate Parents Council
Sue Mundy
Wantagh, NY
Phone:  (516) 826-3452
suemundy@optonline.net

Pathfinder
Adele Liu (Adult)
(Parry Romberg Syndrome)
Phone:  (917) 656-3913
blue1willow@aim.com

Pathfinder
Amy Daley (UCLP)
Cicero, NY
Phone:  (315) 288-5439

Pathfinder
Chuck Trotti (Adult) (CLP)
Brooklyn, NY
Loa14@aol.com

Pathfinder
Loretta Schlesing
(BCLP, Iris Coloboma)
Jamestown, NY
Phone:  (716) 488-0796
lolo6121978@hotmail.com

Pathfinder
Your Name Here!




Pathfinder
Your Name Here!




Pathfinder
Your Name Here!



Pathfinder Partner Organization
Brighter Faces Long Island
Sherree O'Shea
Phone:  (631) 689-2573
brighterfaces@aol.com
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