Pathfinder Partner Organizations

Pathfinder Partner Organizations (PPOs) are formal and informal networks serving a country, city, region, team, or hospital.  PPOs are expected to coordinate outreach and referral efforts with the Pathfinder Outreach Network Program Director and the Executive Director of AmeriFace.


Criteria for Support Organizations:

  • Membership is open to formal tax-exempt 501(c)(3) non-profit organizations, as well as informal local/regional organizations.
  • Organization leadership representatives and condition-specific representative families must register as Pathfinders and agree to be listed in our national database, making themselves available to receive referrals for support and education purposes.
  • Website visitors must be able to easily navigate to an AmeriFace-associated program website link on the organization’s website.
  • Periodic reports of organization activities will be made at the Pathfinder program website (file your report here).
  • All Pathfinder Partner Organizations will adhere to the AmeriFace Code of Ethics.
  • All Pathfinder Partner Organizations will conduct their activities pursuant to all applicable federal, state and local laws.
  • Formal tax-exempt 501(c)(3) non-profit organizations must remain in good standing with all local, state and federal agencies, including the Internal Revenue Service (IRS).

PPOs hold special status on the AmeriFace website and associated program websites.  They are also awarded use of the PPO logo for their website(s), letterhead, business cards, etc.  There is no PPO membership fee.

Become a Pathfinder Partner Organization!Recommend a Pathfinder Partner Organization!

AmeriFace recognizes CarePages as a Pathfinder Partner Organization,
serving a variety of medical support communities, including our member families.

A variety of weekend and week-long camp experiences are available.  Download 2014 Directory

Pathfinder Partner Organizations (PPOs) are listed alphabetically.
© ameriface, PO Box 751112, Las Vegas, NV 89136-1112
Toll-free:  (888) 486-1209  Fax:  (702) 341-5351 info@ameriface.org
DisclaimerPrivacy Policy
SUPPORT ORGANIZATIONS
(UNDER CONSTRUCTION)

AmeriFace - You Are Here!
The Premier Cleft/Craniofacial Support Organization!
Debbie Oliver, Executive Director
PO Box 751112
Las Vegas, NV 89136-1112
Toll-free:  (888) 486-1209
Phone:  (702) 769-9264
Fax:  (702) 341-5351
info@ameriface.org

Programs of AmeriFace include:

cleftAdvocate
Crouzon Support Network
Goldenhar Syndrome Support Network
North American Craniofacial Family Conference (NACFC)
Pathfinder Outreach Network (serving all PPO organizations)
Treacher Collins Syndrome Support Network

The following organizations qualify as
Pathfinder Partner Organizations and serve as patient/family support organizations:

AboutFace Craniofacial Family Society Corp. Canada
123 Edward St., Suite 1003
Toronto, ON, Canada M5G 1E2
Phone:  (416) 597-2229 or 1-800-665-FACE
Fax:  (416) 597-8494
info@aboutfaceinternational.org

Apert International
Post Office Box 2571
Columbia, SC 29202
Phone:  (803) 732-2372
E-mail Founders Don and Cathie Sears

Changing Faces
The Squire Centre
33-37 University Street
London, WC1E 6JN
Phone:  0845-4500-275
Fax:  0845-4500-276
info@changingfaces.org.uk

Children's Craniofacial Association
13140 Coit Road, Suite 517
Dallas, TX 75240
Phone:  (800) 535-3643 or (214) 570-9099
contactCCA@ccakids.com

Cleft Palate Foundation (CPF)
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514-2820
CLEFTLINE: 1-800-24-CLEFT (24 hours, toll free)
info@cleftline.org

Cleftopedia
Parent/patient feedback on various teams/physicians

Dylan's Smile, Inc.
533 Turnberry Drive
Norwalk, IA  50211
Phone:  (515) 306-2085
daphne@dylanssmile.com

FACES: The National Craniofacial Association
P. O. Box 11082
Chattanooga, TN 37401
Phone:  (800) 332-2373
faces@mindspring.com

Face The Future
100 Southwood Avenue
Knaphill, Woking
Surrey GU21 2EY
Phone:  01483-837-523
gary.lane1@sky.com

Foundation for Faces of Children
258 Harvard St., # 367
Brookline, MA 02446
info@facesofchildren.org

Foundation for Nager and Miller Syndromes (FNMS)
13210 SE 342nd Street
Auburn, WA 98092
Phone:  1-800-507-FNMS
DeDe Van Quill, Director

Freeman-Sheldon Research Group
509 Northmont Way
Salt Lake City, UT 84103-3324
Phone:  (801) 364-7060
info@fspsg.org

Fresh Start Surgical Gifts
2011 Palomar Airport Rd, Suite 206
Carlsbad, CA 92011
Phone:  (760) 944-7774
Toll-Free: (888) 551-1003
Fax:  (760) 944-1729

Grind For Life
2023 N. Atlantic Ave. #236
Cocoa Beach, FL  32931
Phone:  (561) 252-3839
mike@grindforlife.org

Marfan Syndrome Foundation
22 Manhasset Avenue
Port Washington, NY  11050
Phone: (800) 8-MARFAN
Phone:  (516) 883-8712
Fax:  (516) 883-8040

Michigan Cleft Network
Phone:  1-888-MICLEFT
Teresa@MiCleft.org

myFace
Formerly known as the
National Foundation for Facial Reconstruction (NFFR)
333 East 30th Street, Lobby Unit
New York, NY 10016
Phone:  (212) 263-6656
Fax:  (212) 263-7534

Moebius Syndrome Foundation
PO Box 147
Pilot Grove, MO 65276
Phone:  (660) 834-3406
Vicki McCarrell

National Foundation for Ectodermal Dysplasias
410 E. Main Street, P.O. Box 114
Mascoutah, IL  62258-0114
Phone:  (618) 566-2020
Fax:  (618) 566-4718
info@nfed.org

Operation Respect
2 Penn Plaza, 23rd Floor
New York, New York 10121
212-904-5243
info@operationrespect.org

Operation Smile
6435 Tidewater Drive
Norfolk, VA 23509
Phone:  (888) 677-6453)
Phone:  (757) 321-7645
Fax:  (757) 321-7660

The Romberg's Connection
Parry Romberg Syndrome
rombergs@hotmail.com

Pierre Robin Network
3604 Biscayne
Quincy, IL 62305
info@pierrerobin.org

Smile Train
41 Madison Ave., 28th floor
New York, NY 10010
Phone:  (800) 932-9541
or (212) 689-9199
Fax:  (212) 689-9299
info@smiletrain.org

Spokane Smiles
Kari Almeida - (509) 251-8387
Lori Ullman - (509) 999-2195

Stickler Involved People
15 Angelina Drive
Augusta, KS 67010
Phone:  (316) 775-2993
sip@sticklers.org

The Sturge-Weber Foundation
PO Box 418
Mt. Freedom, NJ 07970-0418
Phone:  (800) 627-5482 or (973) 895-4445
Fax:  (973) 895-4846
swf@sturge-weber.org

Virginia Smiles
P.O. Box 2891
Fairfax, VA 22031-2891
info@virginia-smiles.org

World Craniofacial Foundation
7777 Forest Lane, Suite C-621
P.O. Box 515838
Dallas, TX 75251-5838
Phone:  (972) 566-6669, (800) 533-3315
Fax:   (972) 566-3850
info@worldcf.org

(UNDER CONSTRUCTION)
PROFESSIONAL ORGANIZATIONS & ASSOCIATIONS(UNDER CONSTRUCTION)

American Academy of Dermatology
930 E. Woodfield Road
Schaumburg, IL 60173
Phone:  (866) 503-SKIN (7546)

American Academy of Maxillofacial Prosthetics (AAMP)
1121 West Michigan Street
Indianapolis, IN 46202
Phone:  (317) 274-5571
Fax:  (317) 278-2818
sphaug@iupui.edu

American Cleft Palate-Craniofacial Association (ACPA)
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514-2820
Phone:  (919) 933-9044
Fax:  (919) 933-9604
info@acpa-cpf.org

American Dental Association (ADA)
211 East Chicago Ave.
Chicago, IL 60611-2678
Phone:  (312) 440-2500

American Dental Education Association (ADEA)
1400 K Street, NW, Suite 1100
Washington, DC 20005
Phone:  (202) 289-7201
Fax:  (202)289-7204

American Society of Plastic Surgeons (ASPS)
444 E. Algonquin Rd.
Arlington Heights, IL 60005

American Speech-Language-Hearing Association (ASHA)
2200 Research Boulevard
Rockville, MD 20850-3289
Phone:  (301) 296-5700
Fax:  (301) 296-8580
actioncenter@asha.org

Friends of the National Insitute of
Dental & Craniofacial Research (FNIDCR)
1901 Pennsylvania Avenue NW, Suite 607
Washington DC 20006
Phone:  (202) 223-0667
Fax:  (202) 463-1257
peter@fnidcr.org

International Association
of Oral and Maxillofacial Surgeons
17w220 22nd Street, Suite 420 
Oakbrook Terrace, Illinois 60181-4480
Phone:  (630) 833-0945
Fax: ( 630) 833-1382 

(UNDER CONSTRUCTION)
the
cleft/craniofacial
advocates
Making a world of difference in a world of facial differences...
®
®
AmeriFace will help you launch and maintain your local/regional network!
Learn more >>>